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While I'm waiting...Here's a little message!

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"Don't apologize for it...Instead embrace it..." -Pastor Burrell- Dear future husband there is a few things you need to know... Dear future husband, There is a few things that you might never understand about dystonia and that's ok. For example you may never understand what it feels like on a daily basics. Know it is a struggle. A struggle to know and understand that this isn't my fault. I didn't eat something wrong or do anything incorrect to allow dystonia. Know that when I am quit I am not trying to "shut you out", I just don't know how to talk about it in a way that you will understand.  Talking about it means admitting that I have it every single time. That's a tough cookie to swallow.  Know that relationships are hard for me. I'm not sure always why. I wish I could tell you because I would first tell myself. Pushing people away seems to be the easiest. For then I don't have to talk about any of the extra hard things t...

To the doctors who always give up...

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      THE JOURNEY   "The first step to getting anywhere is deciding you're no longer willing to stay where you are."  The last three weeks have been terribly discouraging as I had yet another (17th doctor) exit out of this journey. Leaving us with no answers but oh making an appointment with ANOTHER movement disorder doctor at IU Medical Center without asking. Thanks Doc! No worries though because the wait you ask? Oh just January 2018...no thank you. We've been through this before. Canceled.   I can't even began to express the amount of frustration I've had in swallowing 'that' tough pill...                                                             There are no more answers.    I look back at all the doctor reports, all the test, and some days think "How did I ever get throug...